Informal caregivers of people with cancer: Survey of psychosocial burdens and needs assessment for self-help-based support services.

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00027422

Enrollment

330

Registered

2022-03-28

Start date

2022-03-10

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

ANGEHRIGEDERKREBSERKRANKTEN C00-C97

Interventions

Group 1: relatives of cancer patients: partners of cancer patients Group 2: parents of adult children with cancer Group 3: adult children of parents with cancer

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: The study is going to include partners of people with cancer, parents of adult children with cancer, and adult children of parents with cancer. Voluntary consent to participate in the study is required.

Exclusion criteria

Exclusion criteria: The study excludes minors, potential participants with language barriers, severe cognitive impairments, or severe mental illnesses that make study participation impossible.

Design outcomes

Primary

Measure	Time frame
Study aim: assessment of burden and needs of informal caregivers of cancer patients, in particular identification of needs that can be adressed through selfsupport organisations. Interview data collection: Interview data are analyzed by content analysis (according to Kuckartz, 2018). Hypotheses are developed from the results, which are incorporated into the questions of the subsequent online survey and quantitatively tested on a larger sample. Questionnaire survey: all characteristics will be analyzed descriptively statistically. For the analysis of the scientific questions, relationships between characteristics are identified by correlations and regression analyses.	—

Measure

Time frame

Study aim: assessment of burden and needs of informal caregivers of cancer patients, in particular identification of needs that can be adressed through selfsupport organisations. Interview data collection: Interview data are analyzed by content analysis (according to Kuckartz, 2018). Hypotheses are developed from the results, which are incorporated into the questions of the subsequent online survey and quantitatively tested on a larger sample. Questionnaire survey: all characteristics will be analyzed descriptively statistically. For the analysis of the scientific questions, relationships between characteristics are identified by correlations and regression analyses.

—

Countries

Germany

Contacts

Public ContactSophia;Martina Mählmann;Breuning

Universitätsklinikum FreiburgTumorzentrum Freiburg – CCCF;Medizinische Fakultät, Uniklinik FreiburgInterdisziplinäres Tumorzentrum – CCCFStiftungsprofessur Selbsthilfeforschung

sophia.maehlmann@uniklinik-freiburg.de;martina.breuning@uniklinik-freiburg.de+49 (0)761 270-71553;0761 – 270 71550

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026