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Comparison of quality of life between children and teenagers with IBD and celiac disease - a survey among affected children and their parents

Comparison of quality of life between children and teenagers with IBD and celiac disease - a survey among affected children and their parents - COCOIBD

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00027418
Enrollment
120
Registered
2022-02-10
Start date
2022-02-11
Completion date
Unknown
Last updated
2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

K90.0 K50 K51 K52.3

Interventions

Group 1: Survey among children and teenagers (and their parents) with celiac disease who are between 3 and 18 years old concerning their quality of life. Being used are two illness specific questionna

Sponsors

Uniklinik Köln, Klinik und Poliklinik für Kinder- und Jugendmedizin, Kindergastroenterologie
Lead Sponsor

Eligibility

Sex/Gender
All
Age
3 Years to 18 Years

Inclusion criteria

Inclusion criteria: Patients who are between 3 and 18 years old (and their parents) who have received a confirmed diagnosis of celiac disease respectively IBD in the department of paediatric gastroenterology and hepatology of the University Medical Centre Cologne and who are being treated here.

Exclusion criteria

Exclusion criteria: Missing letter of agreement to participate in the survey or its cancellation.

Design outcomes

Primary

MeasureTime frame
Two validated and established (illness specific) questionnaires are used with the aim of measuring the patients' quality of life as well as identifying mainly impaired areas of it. In addition and only to be filled out by the parents there is a questionnaire used for assessing socioeconomic status. Answers can be given in physical form as well as online via a survey software. The aim is to get 60 answers of each collective.

Secondary

MeasureTime frame
Assessment of quality of life of pediatric children and adolescents with coeliac disease respectively inflammatory bowel diseases.

Countries

Germany

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026