Patient survey on medical care of rare mucosal/skin diseases

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00027414

Enrollment

240

Registered

2021-12-07

Start date

2022-02-03

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

L73.2 L43.8

Interventions

Group 1: Non-interventional cross-sectional study to evaluate the patient journey and routine clinical care with rare mucosal/skin diseases (hidradenitis suppurativa and oral lichen planus) in Germany

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: 1) Patients with physician-diagnosed rare mucosal/skin disease (hidradenitis suppurativa or oral lichen planus) 2) Age = 18 years 3) Written informed consent 4) Ability to understand and complete the questionnaires

Exclusion criteria

Exclusion criteria: 1) Lacking written informed consent 2) Age < 18 Jahre

Design outcomes

Primary

Measure	Time frame
The aim of the study is to characterize the patient journey and routine clinical care of patients with rare mucosal/skin diseases (hidradenitis suppurativa and oral lichen planus) in Germany.	—

Secondary

Measure	Time frame
Investigation of patient and diseases characteristics	—

Countries

Germany

Contacts

Public ContactRotraut Mößner

Klinik für DermatologieUniversitätsmedizin Göttingen

rmoessn@gwdg.de+495513966401

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026