refractory symptoms at the end of life
Conditions
Interventions
Group 1: Survey of staff of all professional groups in the pilot centers by means of telephone interviews, questionnaire survey, case discussions and focus groups on feasibility, acceptance and usabil
Sponsors
Universitätsklinikum Erlangen, Abteilung für Palliativmedizin, Friedrich-Alexander-Universität Erlangen-Nürnberg
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: pilot center employees: employed on site for at least one month
Exclusion criteria
Exclusion criteria: lack of the German language since for this study there will be only a version in German available
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Description of the feasibility, acceptability and usability of the multimodal intervention as well as adherence (whether the tools and the overall intervention were put into practice as intended) in different specialist palliative care settings (inpatient and community setting). Based on (a) a quantitative medical record analysis, (b) a questionnaire survey and focus groups with staff of the participating pilot centers, and (c) qualitative interviews with patients and relatives with sedation experience. Data will be collected during and following the piloting phase at the four pilot centers. | — |
Secondary
| Measure | Time frame |
|---|---|
| Selection and, if necessary, adaptation of potential outcome parameters that could measure the effect of the intervention on clinical practice in a follow-up study. Possible outcome parameters are (a) the effect on palliative care staff's confidence in using sedative drugs and (b) consequences for the quality of patient care as assessed by palliative care staff. | — |
Countries
Germany
Contacts
Public ContactManuela Schneider
Universitätsklinikum Erlangen, Abteilung für Palliativmedizin, Friedrich-Alexander-Universität Erlangen-Nürnberg
Outcome results
None listed