German epidemiological and clinical study of patients with pityriasis rubra pilaris

German epidemiological and clinical study of patients with pityriasis rubra pilaris - Epi-PRP

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00027232

Enrollment

200

Registered

2021-11-17

Start date

2021-12-06

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

L44.0

Interventions

Group 1: Prospective, non-interventional registry: Patients with pityriasis rubra pilaris and their treating physicians will complete questionnaires on patients, disease, and treatment characteristics

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: 1) Physician-diagnosed pityriasis rubra pilaris 2) Age = 18 years 3) Informed consent 4) Ability to understand and complete the questionnaires

Exclusion criteria

Exclusion criteria: 1) Lacking informed consent 2) Age < 18 years

Design outcomes

Primary

Measure	Time frame
Evaluation of disease characteristics, burden of disease, and course of disease in pityriasis rubra pilaris in routine care.	—

Secondary

Measure	Time frame
1) Identification of comorbidity 2) Evaluation of health care provision in routine care 3) Estimation of patient benefit 4) Assessment of unmet needs 5) Identification of predictors of course of disease and disease activity	—

Countries

Germany

Contacts

Public ContactChristian Kromer

Universitätsmedizin Göttingen

christian.kromer@med.uni-goettingen.de+49 (0)551/39-66401

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026