Q27.8 Q27.9 Q28.3 D18.1 M89.5 Q82.5 Q27.3 Q87.2 Q85.8 Q27.3 Q28.2 I78.0 Q87.3 Q82.8 Q87.8 Q85.8 Q78.4 Q87.2 D18.0 C49.9 C22.3
Conditions
Interventions
Group 1: All patient information and clinical data are collected in an electronic record form (eCRF). For the VasMut Registry, these are maintained in the RedCap database. In addition, data may also b
Sponsors
Universitätsklinik Freiburg, Kinder- und Jugendklinik, Pädiatrische Hämatologie und Onkologie
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: - Clinical diagnosis - No age restriction - Patients (or their legal representatives) have given informed consent
Exclusion criteria
Exclusion criteria: - Written consent to register participation is not given
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| - Continuous registration of all patients with diagnosed vascular malformation or tumor | — |
Secondary
| Measure | Time frame |
|---|---|
| - Documentation of clinical characteristics, treatment and outcome data (disease status, treatment decisions, treatment, quality of life, survival). - Assessment of biological disease characteristics (genetic findings) and correlation with clinical outcome data (prognostic and predictive markers, e.g., response to various forms of therapy) | — |
Countries
Germany
Contacts
Public ContactFriedrich Kapp
Universitätsklinik Freiburg, Kinder- und Jugendklinik, Pädiatrische Hämatologie und Onkologie
Outcome results
None listed