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Registry for Patients with Vascular Malformations and Tumors (VasMuT)

Registry for Patients with Vascular Malformations and Tumors (VasMuT)

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00026788
Enrollment
1000
Registered
2021-10-08
Start date
2021-10-27
Completion date
Unknown
Last updated
2026-06-01

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Q27.8 Q27.9 Q28.3 D18.1 M89.5 Q82.5 Q27.3 Q87.2 Q85.8 Q27.3 Q28.2 I78.0 Q87.3 Q82.8 Q87.8 Q85.8 Q78.4 Q87.2 D18.0 C49.9 C22.3

Interventions

Group 1: All patient information and clinical data are collected in an electronic record form (eCRF). For the VasMut Registry, these are maintained in the RedCap database. In addition, data may also b

Sponsors

Universitätsklinik Freiburg, Kinder- und Jugendklinik, Pädiatrische Hämatologie und Onkologie
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: - Clinical diagnosis - No age restriction - Patients (or their legal representatives) have given informed consent

Exclusion criteria

Exclusion criteria: - Written consent to register participation is not given

Design outcomes

Primary

MeasureTime frame
- Continuous registration of all patients with diagnosed vascular malformation or tumor

Secondary

MeasureTime frame
- Documentation of clinical characteristics, treatment and outcome data (disease status, treatment decisions, treatment, quality of life, survival). - Assessment of biological disease characteristics (genetic findings) and correlation with clinical outcome data (prognostic and predictive markers, e.g., response to various forms of therapy)

Countries

Germany

Contacts

Public ContactFriedrich Kapp

Universitätsklinik Freiburg, Kinder- und Jugendklinik, Pädiatrische Hämatologie und Onkologie

friedrich.kapp@uniklinik-freiburg.de+49 761 270 45210

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Jun 11, 2026