Care, care needs and needs of people after cancer in childhood or adolescence. Module 2

Conditions

ICCC-3

Ekaterina A, Thorsten L, Gabriele C, Juliane G, Kathrin H, Pietro T, Enno S, Katja B.

2025-01-062 citations

10.1038/s41598-024-84156-y

“You First Have to Check Out the Doctors”: Transition Expectations and Experiences of Survivors After Pediatric Cancer

Ekaterina Aleshchenko, Thorsten Langer, Gabriele Calaminus, J. Glogner, Henrike Haugke et al. (8 authors)

Cancer Medicine2024-12-013 citations

10.1002/cam4.70455

VersKiK qualitative study design: actual follow-up needs of paediatric cancer survivors, their informal caregivers and follow-up stakeholder perceptions in Germany

Ekaterina Aleshchenko, Enno Swart, Mathias Voigt, Thorsten Langer, Gabriele Calaminus et al. (7 authors)

BMJ Open2024-02-017 citations

10.1136/bmjopen-2023-072860

Long-term care, care needs and wellbeing of individuals after cancer in childhood or adolescence (VersKiK): study protocol of a large scale multi-methods non-interventional study

Ekaterina Aleshchenko, Enno Swart, Claudia Spix, Mathias Voigt, P. Trocchi et al. (20 authors)

BMC Health Services Research2022-09-2015 citations

10.1186/s12913-022-08549-3

Interventions

Group 1: Cancer survivors in childhood or adolecence Steps / Schedule: Preparation and pretest of qualitative survey completed Q1 2022 Completion of the qualitative survey Q4 2022 Completion of data a

Eligibility

Sex/Gender

All

Age

12 Years to 45 Years

Inclusion criteria

Inclusion criteria: Residence in Germany; Diagnosis according to ICCC-3 under the age of 18 Voluntariness

Exclusion criteria

Exclusion criteria: Residence outside Germany; Diagnosis according to ICCC-3 over the age of 18

Design outcomes

Primary

Measure	Time frame
1. Are the patients and their relatives satisfied with the follow-up provided? 2. Are the patients and their relatives able to manage their own state of health on the basis of the information provided? 3. To what extent are they adherent to aftercare guidelines and plans?	—

Secondary

Measure	Time frame
a. Type of aftercare provider (clinic, outpatient clinic, contract doctor). b. Follow-up care for transition patients	—

Countries

Germany

Contacts

Public ContactEnno Swart

Institut für Sozialmedizin und Gesundheitssystemfor-schung (ISMG), Med. Fakul-tät der Otto-von Guericke-Universität Magdeburg

enno.swart@med.ovgu.de+49 391 67-24306

Outcome results

None listed