ICCC-3
Conditions
Interventions
Group 1: Cancer in childhood and adolecence survivours
Steps / Schedule:
GCCR / insurance funds - data prepared for data comparison Q4 2021
GCCR / insurance funds - data for data comparison extracted
Drawing of the statutory health insurance control group Q3 2022
Task force data linkage established Q2 2021
Work of the data linkage task force with partial report completed Q1 2023
Selection and inte
Sponsors
DLR Projektträger, Bereich Gesundheit
Eligibility
Sex/Gender
All
Age
No minimum to 18 Years
Inclusion criteria
Inclusion criteria: At GCCR: Diagnosis year from 1991 The patient was registered by name with the consent (or consent of the legal guardians) at the DKKR and had not revoked this by the data collection deadline Diagnosis included in ICCC-3 Date of birth from January 1, 1976 Survived to at least January 1, 2017 Resident in Germany at the time of diagnosis and not living abroad as of January 1, 2017 Age at time of diagnosis: <15 years (year of diagnosis up to 2008); <18 years (from diagnosis year 2009) For health insurance funds: Date of birth from 01.01.1976 At least temporarily insured in the period 2017-2021 At least temporary residence in Germany for the period of data delivery 2017-2021
Exclusion criteria
Exclusion criteria: For insurance funds: Insured persons of the employee health insurance Participants in the protection program (insured persons with special protection status) Insured persons with a data protection label
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| a. The use of diagnostic and therapeutic services for people who have had cancer in childhood or adolescence, as well as their incapacity for work. b. Psychological and physical long-term effects that occur in patients diagnosed with cancer in childhood. c. Follow-up guideline compliance of cancer survivours in childhood or adolescence (Module 1) | — |
Secondary
| Measure | Time frame |
|---|---|
| a. Follow-up care for cardiological and audiological late-effects in comparsion to the recommendations of national and international guidelines. b. Factors influencing adherence to these follow-up guidelines (module 3) | — |
Countries
Germany
Contacts
Public ContactEnno Swart
Institut für Sozialmedizin und Gesundheitssystemfor-schung (ISMG), Med. Fakul-tät der Otto-von Guericke-Universität Magdeburg
Outcome results
None listed