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Parkinson’s Disease Stigma Questionnaire (PDStigmaQuest): Development and Field Validation of a Questionnaire for Stigma in Patients with Idiopathic Parkinson’s Syndrome

Parkinson’s Disease Stigma Questionnaire (PDStigmaQuest): Development and Field Validation of a Questionnaire for Stigma in Patients with Idiopathic Parkinson’s Syndrome

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00025513
Enrollment
350
Registered
2022-03-21
Start date
2022-03-23
Completion date
Unknown
Last updated
2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

G20.0 G20.1 G20.2

Interventions

Group 1: Patients with Idiopathic Parkinson's Syndrome fill in a stigma questionnaire, a feedback questionnaire referring to the stigma questionnaire, as well as other questionnaires measuring for exa

Sponsors

Universitätsklinikum Köln
Lead Sponsor

Eligibility

Sex/Gender
All
Age
18 Years to 90 Years

Inclusion criteria

Inclusion criteria: All arms: - Vision and hearing not impaired or adequately corrected (glasses, hearing aid, etc.) - Sufficient german language skills - No moderate or severe diseases which could interfere with the ability to complete the study - Cognitive status: no substantial impairment - Consent form signed/consented Patients additionally: - Patients with IPS of the clinic and polyclinic of Neurology that introduce themselves in the context of clinic routine or patients that are treated in hospital because of clinical indication. -No other clinically relevant neurological disease. -No parkinsonism of other type. For health specialists, caregivers and healthy controls additionally: - No parkinsonism, dementia, neurological or psychiatric disease For health specialists additionally: - Expertise in IPS - Not older than 70 years old

Exclusion criteria

Exclusion criteria: - Not fulfilling inclusion criteria - People that could be dependent on the people conducting the study

Design outcomes

Primary

MeasureTime frame
The development and validation of a questionnaire measuring stigma in patients with Idiopathic Parkinson’s Syndrome.

Secondary

MeasureTime frame
Motor assessment, questions about non-motor symptoms which could be associated with stigma.

Countries

Germany

Contacts

Public ContactVasilija Stopic

Universitätsklinikum Köln

vasilija.stopic@uk-koeln.de0221 478 4013

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026