Health Services Research: Cost of Illness Analysis and Pathways of Patients with Spina Bifida and Neuro-Urological Disorders in Germany

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00025468

Enrollment

Registered

2021-08-09

Start date

2021-09-01

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Q05

Interventions

Group 1: retrospective data collection Recording of medical costs through the evaluation of medical costs via the patients' health insurance companies. (Patient receipt = services used). At the same

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Presence of spina bifida disease in conjunction with neuro-urological complaints

Exclusion criteria

Exclusion criteria: In the absence of spina bifida disease with teuro-urologic symptoms.

Design outcomes

Primary

Measure	Time frame
Analysis of the patient pathways by evaluating the service data of the health insurance companies. When was which doctor visited and how often, when were other doctors / interdisciplinary centers visited.	—

Secondary

Measure	Time frame
Recording of medical costs	—

Countries

Germany

Contacts

Public ContactMartin Mücke

Zentrum für seltene Erkrankungen Bonn

muecke@uni-bonn,de022828751472

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026