Q20 Q26 Q21 Q22 Q23 Q24 Q25
Conditions
Interventions
Group 1: Assessment once at discharge from Intensive Care Unit with the following instruments:
- Medical variables derived from electronic patient files
- Emotional Burden as assessed with the Germa
Sponsors
Deutsches Herzzentrum Berlin, Klinik für angeborene Herzfehler - Kinderkardiologie
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: - Parents of an infant with congenital heart disease age 0-12 months, hospitalized at a pediatric cardiac intensive care unit for at least 12 hours at the Heart Center Berlin or Bad Oeynhausen - German language proficiency
Exclusion criteria
Exclusion criteria: - Unclear custody status - Palliative care path
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Goal of this hypothesis generating study is an exploration of parent satisfaction with family centered care and potential associations with medical variables, socio-demographic information and emotional burden of the parents, as well as quality of life of the infant. | — |
Secondary
| Measure | Time frame |
|---|---|
| Goal of this hypothesis generating study is an exploration of parent satisfaction with family centered care and potential associations with medical variables, socio-demographic information and emotional burden of the parents, as well as quality of life of the infant. | — |
Countries
Germany
Contacts
Public ContactHannah Ferentzi
Deutsches Herzzentrum Berlin, Klinik für angeborene Herzfehler - Kinderkardiologie
Outcome results
None listed