Organizational development of the extended Newborn screening - work package 1: structured individual interviews

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00025081

Enrollment

Registered

2021-07-21

Start date

2021-06-30

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Newborn Screening

Interventions

Group 1: structured individual interviews

workshop

focus groups

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: Representatives of the respective target group (maternity clinic, pediatric practice, screening laboratory, treatment center) with expertise in ENS

Exclusion criteria

Exclusion criteria: none

Design outcomes

Primary

Measure	Time frame
The results of the interviews, the workshop and focus groups can provide information that can contribute to improving the processes and structures of the ENS and help to ensure the quality of the entire screening process even when new target diseases are introduced.	—

Secondary

Measure	Time frame
Processes and structures of the ENS in Germany	—

Countries

Germany

Contacts

Public ContactVeronika Throner

Ludwig-Maximilians-Universität München Lehrstuhl für Public Health und Versorgungsforschung

ens@ibe.med.uni-muenchen.de089218078264

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026