Multi-/comorbidity F00.0 F00.1 F01.1 F00.2 F02.0 F03
Conditions
Interventions
Group 1: Dementia care management in different settings (physician networks, dementia networks, counseling centers, hospitals, nursing services)
Sponsors
Deutsches Zentrum für Neurodegenerative Erkrankungen e. V. (DZNE)
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Participants must meet the following inclusion criteria to be eligible to participate in the study: 1. patient with formal dementia diagnosis or suspected dementia, 2. living in their own home, 3. able to read and understand German, 4. consent given to participate in the study. Inclusion criteria for relatives are: Relative was named as relative by the study participant and gave his written informed consent to the study.
Exclusion criteria
Exclusion criteria: PwD living in the home (institutionalised)
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| (1) Patient clientele: The parameters used are the number of patients to be cared for, the social-demographic and clinical characteristics of PwD and their relatives as well as the number and type of open care needs. Social demographic factors include gender, age, life situation (alone, not alone or institutionalised and living at home) and socio-economic status. Clinical factors include multimorbidity, cognitive and physical deficits, depressive symptoms, and the quality of life of the patient and their relatives. Open care needs include medical, psychosocial, socio-legal, drug and nursing needs. These instruments for determining clinical factors and unmet care needs are validated, which ensures the validity of the results and comparability with German and international studies. survey instruments: - (Health-related) quality of life (Quality of Life in Alzheimer´s Disease - QOL-AD; EQ-5D) - Daily Life Activities (ADL) (Lawton - PSMS & IADL) - Depression (Geriatric Depression Scale - GDS) - Social inclusion (social functioning in dementia - SF-DEM) - Dementia Specific Treatment and Care (Generic Instrument) - Family burden/ quality of life (Zarit burden interview - ZBI) - Utilisation of medical and non-medical care services in old age (FIMA) - Hospital admissions (as part of the use of medical services) - Institutionalisation (as part of the use of medical services) - Cognition (Mini Mental State Examination - MMSE) - Drug treatment (diagnoses and prescriptions from medical reports, medication management) - Use of Informal Care (The Resource Utilisation in Dementia Instrument - RUD) | — |
Secondary
| Measure | Time frame |
|---|---|
| (2) the Dementia Care Management: The number and type of intervention activities of Dementia Care Managers as well as the intensity of the intervention, derived from the number of home visits and family doctor visits, telephone calls, number of contacts to the different service providers involved in the care, are considered. The data of the intervention management system and the individually created intervention list as well as the corresponding activity protocol, which records the type and number of contacts to the respondent, are used to quantitatively measure the effort / intensity of the intervention. This is also the basis for the cost analysis of the intervention. (3) Implementation barriers: The barriers, disturbance variables and other obstructive factors in the respective setting are to be recorded. The intensity of the support provided by the respective providers in the setting is also to be determined by questioning the Dementia Care Manager. (4) intervention costs: Due to the possibility of different forms of intervention, intervention costs may also vary. Therefore, personnel costs and running costs for the implementation of the intervention are to be recorded. Different utilization rates of a Dementia Care Manager (i.e. different patient numbers per quarter) also lead to different costs of Dementia Care Management per PwD. Therefore, the costs should be set in relation to the number of PwD supplied per setting. (5) acceptance: The acceptance as well as the subjectively perceived benefit of Dementia Care Management should be determined by a survey of the respective care providers as well as of the PwD and their relatives. For the evaluation of the acceptance, further quantitative questionnaires will be created or used as well as qualitative semi-structured interviews with the Dementia Care Managers, the providers as well as the PwD and their relatives. The interviews are transcribed and evaluated using qualitative content analysis according to Ma | — |
Countries
Germany
Contacts
Public ContactBernhard Michalowsky
Deutsches Zentrum für Neurodegenerative Erkrankungen Rostock / Greifswald Teilstandort Greifswald
Outcome results
None listed