Patients in outpatient care with incurable, advanced oncological and non-oncological diseases and limited life expectancy with palliative care needs
Conditions
Interventions
Group 1: Insured members of AOK Lower Saxony (number of cases to be determined in the project)
basis of the analysis will be data pertaining to in 2019 deceased members.
Group 2: GPs in Lower Saxony (n=774)
all GPs working in Lower Saxony listed in the online medical directory are asked to complete a questionnaire.
Group 3: Leaders of specialised outpatient palliative care teams (n=31)
all SAPV teams operating in Lower Saxony are asked to participate in the survey.
Group 4: Invited experts on end-of-life care (n=20)
providers and stakeholders from nationwide hospice and palliative care are invited.
Group 5: Invited Delphi participants (n=40)
comparable to Arm 4 more nationwide actors are invited.
Sponsors
Medizinische Hochschule Hannover
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Arm 1: Deceased members with date of death in 2019, aged at least 18 years, with continous insurance in AOK Lower Saxony in the year of death and the preceding calendar year Arm 2: General practitioners with registration in Lower Saxony Arm 3: SAPV teams based in Lower Saxony Arm 4 and 5: Providers and actors from the nationwide hospice and palliative care
Exclusion criteria
Exclusion criteria: Arm 1: Age under 18 years, no continuous insurance in AOK Lower Saxony Arm 2: Gerenal practitioners exclusively treating privately insured patients Arm 3: none Arm 4 and 5: Experience in hopsice and palliative care for at least one year
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The aim of the study is a systematic research of BQKPMV. which was introduced in 2017, and to record and analyse the administration of this form of care in the area state Lower Saxony. By means of systematically developed recommendations, the project targets at a contribution to a future-oriented, needs-based development and optimisation of BQKPMV. | — |
Secondary
| Measure | Time frame |
|---|---|
| Arm 1: Quantitative routinely collected data of insured members of the AOK Lower Saxony are analysed with regard to BQKPMV services, care histories and effects on care. Patients who received BQKPMV services will be described in more detail, especially in comparison to patients who received generalist or specialist oupatient palliative care (AAPV or SAPV) services. Arm 2 and 3: In the first step of the project, questionnaires will be developed to assess the experiences with BQKPMV made by primary care physicians (2) and SAPV teams (3). Arm 2 will focus on the number and characteristics of contract physicians as well as on the course and outcome of the approval process. Arm 3 will focus on the extent to which work at the interfaces between AAPV, BQKPMV and SAPV is (not) successful and which practical implementation models have been developed. Arm 4: Recommendations for the adaptation and optimisation of the BQKPMV will be developed in an expert workshop. The aim is to develop practice-oriented solutions with recommendation character. Arm 5: The recommendations developed in arm 4 will be consented in a nationwide online Delphi process. In 2-3 rounds of voting, the recommendations are individually rated on a verbal ordinal scale in terms of their relevance for the further development of BQKPMV and their feasibility for implementation in health care practice. If 80% of the participants agree with a recommendation, a group consensus is reached. | — |
Countries
Germany
Contacts
Public ContactStephanie Stiel
Medizinische Hochschule Hannover
Outcome results
None listed