F03
Conditions
Interventions
Group 1: The implementation of the intervention will be conducted in Bremen in the homes of the participating dyads. The joint activation sessions should be carried out at minimum twice per week for a
session frequency: minimum twice per week
duration 10-30 minutes
session frequency and duration depending on the capacity of the dyad, but optimally at least two session per week, for at least 10 minutes per session). At the beginning of the project, all participat
session frequency and duration depending on the capacity of the dyad, but optimally at least two session per week, for at least 10 minutes per session). At the beginning of the proj
Sponsors
Universität Bremen
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Eligible participants are community dwelling People with Dementia (PwD) and their Informal caregievrs (ICs) that either live together, or where the IC is a family member that of the PwD, visiting relative at least once per week. These PwD already have a formal diagnosis of Dementia or Mild Cognitive Impairment, where no forms of dementia are excluded.
Exclusion criteria
Exclusion criteria: participants will be excluded if they are: heavy immobile; deaf/severely hearing impaired; blind/severely visually impaired; have had more than one stroke; severe depression, schizophrenia, or struggling with an ongoing addiction
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| For the standardised assessment of the social health outcomes of the participants, internationally validated instruments are used wherever possible in order to compare the results with those of other studies. Individual variables that are important for the research question (age, gender, stage of dementia, living situation, etc.) are individually added to the standardized instruments (own data entry sheet). For the participants, the primary outcome of Quality of Life (QoL) will be evaluated by the standardized measurement instruments and collected through questionnaires. In addition to the individual course data of the participants, baseline data for each participant is collected before initiating the intervention. Background data sources on the participants are the information provided by the participants themselves by means of the standardized questionnaires. In the study, measurement tools will be used to collect data before and after the intervention in addition to baseline data where: t0 = baseline data, collected prior to entering the study; t1 = pre-intervention data, collected prior to entering the intervention phase; and t2 = post-intervention data, collected at the end of the 4-week period of intervention. The semi-structured interviews will be collected after the completion of the intervention at the same point in time as the second quantitative data collection, (t2). The standardized measurement instruments to measure Quality of Life is: For the person with dementia: Dementia Quality of Life Instrument (DEMQOL/DEMQOL-Proxy). For the informal caregiver: Care-Related Quality of Life (CarerQol-7D and CarerQol-VAS) | — |
Secondary
| Measure | Time frame |
|---|---|
| For the standardised assessment of the social health outcomes of the participants, internationally validated instruments are used wherever possible in order to compare the results with those of other studies. Individual variables that are important for the research question (age, gender, stage of dementia, living situation, etc.) are individually added to the standardized instruments (own data entry sheet). For the participants, the secondary outcomes, relationship quality and caregiver burden (CB), will be evaluated by the standardized measurement instruments and collected through questionnaires. In the study, measurement tools will be used to collect data before and after the intervention in addition to baseline data where: t0 = baseline data, collected prior to entering the study; t1 = pre-intervention data, collected prior to entering the intervention phase; and t2 = post-intervention data, collected at the end of the 4-week period of intervention. The semi-structured interviews will be collected after the completion of the intervention at the same point in time as the second quantitative data collection, (t2). The standardized measurement instruments to measure Relationship quality is, for both the person with dementia and their caregiver: The Scale of Quality of Current Relationship in Caregiving (SQCRC). Perceived caregiver burden, for the informal caregiver: Burden Scale for family caregiving (BSFC) Finally, semi-structured in-depth interviews will be conducted to explore the views, reflections and experiences of the participants in relation to social interaction and communication, as well as their underlying motivation and experience with inviting technology into their social interactions. These interviews will be conducted at baseline (t0) and post-intervention (t2). | — |
Countries
Germany
Contacts
Public ContactViktoria Hoel
Universität Bremen
Outcome results
None listed