Prevalence and care requirements of psychological comorbidities and pain in patients with generalised symptomatic hypermobility in the context of hypermobility spectrum disorder (HSD)/ Ehlers-Danlos syndromes (EDS).“

Prevalence and care requirements of psychological comorbidities and pain in patients with generalised symptomatic hypermobility in the context of hypermobility spectrum disorder (HSD)/ Ehlers-Danlos syndromes (EDS).“ - EDACO

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00024554

Enrollment

Registered

2023-01-23

Start date

2021-12-01

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Q79.6

Interventions

Group 1: Epidemiological study: Investigation of the prevalence of different comorbidities and care-related needs in patients with HSD/ EDS with the help of a self-developed quiery as well as standart

Eligibility

Sex/Gender

All

Age

18 Years to 75 Years

Inclusion criteria

Inclusion criteria: - Patients with generalised symptomatic hypermobility diagnosed with Hypermobility Spectrum Disorder or the following subtypes of Ehlers-Danlos syndromes (hypermobile EDS, classical EDS, classical-like EDS). - Age: 18 to 75 years; - sufficient knowledge of the German language - Signed informed consent.

Exclusion criteria

Exclusion criteria: - Patients with non-classified connective tissue disorders or other Ehlers-Danlos subtypes. - Persons under 18 and over 75 years of age - Persons with cognitive impairments and/or insufficient knowledge of the German language as well as insufficient reading skills

Design outcomes

Primary

Measure	Time frame
How high is the point prevalence for comorbid mental disorders and chronic pain in patients diagnosed with HSD or EDS (hEDS, kEDS, and clEDS) at the EDS specialty consultation centre at Cologne University Hospital?	—

Secondary

Measure	Time frame
A) What is the current state of medical care for patients with generalized symptomatic hypermobility?	—

Countries

Germany

Contacts

Public ContactIliana Tantcheva-Poor

Klinik für Dermatologie Universität zu Köln

iliana.tantcheva-poor@uk-koeln.de0221-478-82290

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026