C50 C79
Conditions
Interventions
Group 1: The online self-help meetings take place via the online platform Zoom once a week on different days of the week and times of the day. The participating moderators have been trained as moderat
Sponsors
UNIVERSITÄTSKLINIKUM FREIBURG, Tumorzentrum/ CCC Freiburg Stiftungsprofessur Selbsthilfeforschung
Eligibility
Sex/Gender
Female
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: 1) Participants/moderators: women; with metastatic cancer; with access to the mobile device for visual and auditory participation in online self-help meetings or participation at weekend seminars 2) Psycho-oncologists: licensed psychotherapist; with access to mobile device for visual and auditory participation in online self-help meetings.
Exclusion criteria
Exclusion criteria: Minors, potential participants with language barriers, serious cognitive impairments or severe mental illnesses that make participation in the study impossible are excluded from the study.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Aim of the project is the scientific evaluation of the implementation and testing of the newly created self-help programs and, if necessary, the adaptation of the newly created program with regard to various target criteria. Regarding the online self-help meetings, participants were asked at T0 (baseline) about: previous experiences with self-help/digital programs and professional support, expectations, goals, wishes and fears of the meetings. At T1 and T2, participants were asked about: acceptance of the program, barriers to access programs, group interaction and dynamics, opportunities for active participation and addressing topics, growth in experience and knowledge, difficulties encountered, evaluation of moderation/ psychooncological support/lectures, overall ratings of the program, acceptance of the online format, further experiences and wishes. Similar questions ??are also asked at T1 after the weekend seminar. In addition, the evaluation of the workshops/lectures/exercises and the conference venue. Three months later, at T2, the extent to which the content learned/experiences have been transferred to everyday life is also asked. Selected interviews are conducted with moderators and participants of the online self-help meetings in order to gain further insights into the experiences, difficulties, wishes and potential for change. | — |
Secondary
| Measure | Time frame |
|---|---|
| The moderators and participants of the online self-help meetings and weekend seminars used questionnaires on anxiety disorders (GAD-7), depression (PHQ-9) and patient health (SF-12) at all times T0, T1 and T2. At T0 of the online self-help meetings and T1 of the weekend seminars, additional questions on sociodemographics are asked. | — |
Countries
Germany
Contacts
Public ContactSophia Mählmann
UNIVERSITÄTSKLINIKUM FREIBURG, Tumorzentrum/ CCC FreiburgStiftungsprofessur Selbsthilfeforschung
Outcome results
None listed