Organizational development of the extended Newborn screening - work package 1: expert survey

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00024192

Enrollment

600

Registered

2021-03-05

Start date

2021-04-01

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Newborn screening

Interventions

Group 1: Expert survey

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: 1.) Function in obstetrics department (e.g. medical director, senior physician, assistant doctor, nursing staff in a managerial position, nurse, midwife) 2.) Expertise in the processes and structures of the ENS

Exclusion criteria

Exclusion criteria: none

Design outcomes

Primary

Measure	Time frame
The results of the online survey can provide information that can contribute to improving the processes and structures of the ENS and help to ensure the quality of the entire screening process even when new target diseases are introduced.	—

Countries

Germany

Contacts

Public ContactVeronika Throner

Ludwig-Maximilians-Universität München Lehrstuhl für Public Health und Versorgungsforschung

ens@ibe.med.uni-muenchen.de089 2180 78264

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026