Long-distance caregivers of patients, = 18 years of age, who suffer from a malignant or non-malignant life-limiting chronic disease
Conditions
Interventions
Group 1: Family caregiver survey via (1) one-time semi-structured interviews as well as (2) socio-demographic data
Sponsors
Medizinische Hochschule Hannover, Institut für Allgemeinmedizin und Palliativmedizin
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Family caregivers (= 18 years of age) of living or deceased adult patients with a malignant or non-malignant life-limiting chronic disease. Caregivers must be due to geographical distance (other place of residence) unable to have daily face-to-face contact with the patient and must give a positive answer to the following screening question: Do you perceive yourself as a long-distance caregiver? Individuals, irrespective of their sex and ethnic background, may participate. Having received comprehensive oral and written information about the nature, the content and aim of the study and about study participation, caregivers provide written informed consent in order to be eligible to participate in the project.
Exclusion criteria
Exclusion criteria: Exclusion criteria are: (1) cognitive impairment such as dementia, (2) insufficient cognitive skills to answer interview questions, (3) significant emotional distress during interview, and/or (4) caregivers of patients deceased >1 year prior to the caregivers' study participation.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The primary outcome is described by a qualitative overview of long-distance caregivers' experiences and needs. Each interview transcript will be analysed by two researchers in the qualitative data analysis software MAXQDA using procedures of Grounded Theory. Interview data will continuously be analysed in order to determine if data saturation has been achieved. Data collection will end once data saturation is obtained. | — |
Countries
Germany
Contacts
Public ContactFranziska A. Herbst
Medizinische Hochschule Hannover, Institut für Allgemeinmedizin und Palliativmedizin
Outcome results
None listed