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General practitioner-based dementia care with coordinated cooperation and risk-stratified use of specialised nurses

General practitioner-based dementia care with coordinated cooperation and risk-stratified use of specialised nurses - DemStepCare

Status
Active, not recruiting
Phases
Unknown
Study type
Interventional
Source
DRKS
Registry ID
DRKS00023560
Enrollment
2400
Registered
2020-11-13
Start date
2019-10-17
Completion date
Unknown
Last updated
2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

F00 F01 F02 F03

Interventions

Group 1: care by specifically trained general practitioners
use of an outpatient clinic, case management or regional support options (depending on the respective needs of the patients) Group 2: care by partly trained general practitioners, contact with case ma

Sponsors

Universitätsklinikum Freiburg
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: diagnosis of dementia, place of residence within the study area, informed consent to participate in DemStepCare

Exclusion criteria

Exclusion criteria: living in a nursing home

Design outcomes

Primary

MeasureTime frame
days of inpatient treatment (intervention group vs. control group 1): self-developed questionnaire item patients' quality of life: Quality of Life in Alzheimer's Disease (QOL-AD) caregivers' burden of care: Berlin Inventory of Caregivers‘ Burden with Dementia Patients (BIZA-D) The primary end points are measured at study inclusion and after 9 months (11 months for patients who have undergone a Covid-19 related treatment break).

Secondary

MeasureTime frame
caregivers' quality of life and comorbidities: World Health Organization Quality of Life Short Form (WHOQOL-Bref), comorbidity score (KoMo-Score) caregivers' stress: 10-point scale, Perceived Stress Scale (PSS-10) caregivers' resilience: Brief Resilience Scale (BRS) stability of care situation: Dementia specific screening tool (DSV) days of inpatient treatment (intervention group vs. control group 2): self-developed questionnaire item and data from health insurance companies hospital admissions: self-developed questionnaire item and data from health insurance companies use of regional support services: self-developed items adequacy of medication: Medication Appropriateness Index (MAI) general practitioners' dementia sensitivity: panel survey, self-developed items The secondary end points relating to patients and caregivers are measured at study inclusion and after 9 months (11 months for patients who have undergone a Covid-19 related treatment break). There are also longitudinal analyses in the intervention group covering the entire duration of the intervention. The secondary end points relating to the general practitioners are measured at baseline (i.e. before the first training sessions), 12 months after completion of the first training, and at the end of the intervention phase.

Countries

Germany

Contacts

Public ContactTeresa Weber

Zentrum für psychische Gesundheit im Alter (ZpGA) Landeskrankenhaus (AöR)

t.weber@zpga.landeskrankenhaus.de06131 - 378 3101

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Jul 16, 2026