Puppet Interview: illness perception in pediatric oncological patients

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00022034

Enrollment

128

Registered

2020-06-30

Start date

2020-07-05

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

illness perceptions of pediatric-oncological patients health-related quality of life F43.1 C00-C97

Interventions

Group 1: substudy 1: survey (questionnaire or puppet interview) on pediatric-oncological patients during their acute treatment phase and their parents at T1 and T2 six months later substudy 2: one-of

Eligibility

Sex/Gender

All

Age

4 Years to 18 Years

Inclusion criteria

Inclusion criteria: cancer diagnosis (substudy 1: primary diagnosis at least one month back; substudy 2: primary diagnosis at least 2 years back).

Exclusion criteria

Exclusion criteria: cognitive impairments (impaired interaction with hand puppets), lack of knowledge on the German language (inhibited understanding of questions), palliative care

Design outcomes

Primary

Measure	Time frame
In substudy 1: at T1: illness perceptions ("Illness Perception Questionnaire - Revised", Moss-morris et al., 2002), at T2: illness perceptions ("Illness Perception Questionnaire - Revised", Moss-morris et al., 2002), health-related quality of life ("Fragebogen zur Erfassung der gesundheitsbezogenen Lebensqualität bei Kindern und Jugendlichen – Revidierte Form (KINDL-R)", Ravens-Sieberer & Bullinger, 1998), fear of Progression ("Fear of Progression Questionnaire", Herschbach et al., 2005), PTSD symptoms ("Child and Adolescent Trauma Screen (CATS)", Sachser et al., 2017), behavioural Problems and strengths ("Strengths and Difficulties Questionnaire (SDQ-Deu)", Goodman, 1997), locus of Control ("Internale-Externale-Kontrolüberzeugung-4 (IE-4)", Kovaleva, Beierlein, Kemper & Rammstedt, 2012), optimism/pessimism ("Skala zur Messung von Optimismus-Pessimismus (SOP-2)", Kemper, Beierlein, Kovaleva & Rammstedt, 2012), self-efficacy ("Allgemeine Selbstwirksamkeit Kurzskala (ASKU)", Beierlein, Kovaleva, Kemper & Rammstedt, 2012). In substudy 2: illness perceptions ("Illness Perception Questionnaire - Revised", Moss-morris et al., 2002), health-related quality of life ("Fragebogen zur Erfassung der gesundheitsbezogenen Lebensqualität bei Kindern und Jugendlichen – Revidierte Form (KINDL-R)", Ravens-Sieberer & Bullinger, 1998), fear of Progression ("Fear of Progression Questionnaire", Herschbach et al., 2005), PTSD symptoms ("Child and Adolescent Trauma Screen (CATS)", Sachser et al., 2017), behavioural Problems and strengths ("Strengths and Difficulties Questionnaire (SDQ-Deu)", Goodman, 1997), locus of Control ("Internale-Externale-Kontrolüberzeugung-4 (IE-4)", Kovaleva, Beierlein, Kemper & Rammstedt, 2012), optimism/pessimism ("Skala zur Messung von Optimismus-Pessimismus (SOP-2)", Kemper, Beierlein, Kovaleva & Rammstedt, 2012), self-efficacy ("Allgemeine Selbstwirksamkeit Kurzskala (ASKU)", Beierlein, Kovaleva, Kemper & Rammstedt, 2012).	—

Measure

Time frame

In substudy 1: at T1: illness perceptions ("Illness Perception Questionnaire - Revised", Moss-morris et al., 2002), at T2: illness perceptions ("Illness Perception Questionnaire - Revised", Moss-morris et al., 2002), health-related quality of life ("Fragebogen zur Erfassung der gesundheitsbezogenen Lebensqualität bei Kindern und Jugendlichen – Revidierte Form (KINDL-R)", Ravens-Sieberer & Bullinger, 1998), fear of Progression ("Fear of Progression Questionnaire", Herschbach et al., 2005), PTSD symptoms ("Child and Adolescent Trauma Screen (CATS)", Sachser et al., 2017), behavioural Problems and strengths ("Strengths and Difficulties Questionnaire (SDQ-Deu)", Goodman, 1997), locus of Control ("Internale-Externale-Kontrolüberzeugung-4 (IE-4)", Kovaleva, Beierlein, Kemper & Rammstedt, 2012), optimism/pessimism ("Skala zur Messung von Optimismus-Pessimismus (SOP-2)", Kemper, Beierlein, Kovaleva & Rammstedt, 2012), self-efficacy ("Allgemeine Selbstwirksamkeit Kurzskala (ASKU)", Beierlein, Kovaleva, Kemper & Rammstedt, 2012). In substudy 2: illness perceptions ("Illness Perception Questionnaire - Revised", Moss-morris et al., 2002), health-related quality of life ("Fragebogen zur Erfassung der gesundheitsbezogenen Lebensqualität bei Kindern und Jugendlichen – Revidierte Form (KINDL-R)", Ravens-Sieberer & Bullinger, 1998), fear of Progression ("Fear of Progression Questionnaire", Herschbach et al., 2005), PTSD symptoms ("Child and Adolescent Trauma Screen (CATS)", Sachser et al., 2017), behavioural Problems and strengths ("Strengths and Difficulties Questionnaire (SDQ-Deu)", Goodman, 1997), locus of Control ("Internale-Externale-Kontrolüberzeugung-4 (IE-4)", Kovaleva, Beierlein, Kemper & Rammstedt, 2012), optimism/pessimism ("Skala zur Messung von Optimismus-Pessimismus (SOP-2)", Kemper, Beierlein, Kovaleva & Rammstedt, 2012), self-efficacy ("Allgemeine Selbstwirksamkeit Kurzskala (ASKU)", Beierlein, Kovaleva, Kemper & Rammstedt, 2012).

—

Secondary

Measure	Time frame
in substudy 2: a screening (developed by the work Group) for strain during psycho-social follow-up care	—

Countries

Austria, Germany

Contacts

Public ContactKristina Herzog

Universitätsklinikum Carl Gustav Carus Dresden Klinik und Poliklinik für Psychiatrie und Psychotherapie

kristina.herzog@uniklinikum-dresden.de+4935145811553

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 10, 2026