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Cross-cultural adaptation and translation of the IPOS Neuro-S8

Cross-cultural adaptation and translation of the IPOS Neuro-S8

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00021783
Enrollment
18
Registered
2020-06-30
Start date
2020-06-24
Completion date
Unknown
Last updated
2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Health care professionals Z51.5

Interventions

Group 1: single-arm- neurological palliative care patients / health care professionals will be asked about the underlying concepts of the IPOS Neuro-S8 using semi-structured interviews

Sponsors

Zentrum für Palliativmedizin
Lead Sponsor

Eligibility

Sex/Gender
All
Age
18 Years to No maximum

Inclusion criteria

Inclusion criteria: Patients: - Current or former patient of the palliative medical consultation service, inpatient or outpatient palliative care or neurological care - Mother tongue German or fluent in German (understanding, reading, answering), sufficient knowledge of English (understanding) - Place of residence in Germany - age >=18 - Ability to give informed written consent (if the patient is physically unable to sign, there is an independent witness who i) is not employed at the trial site or in an otherwise relationship of dependency, ii) speaks German (understanding, reading, responding) and iii) is able to give written informed consent on behalf of the patient) Health care professionals: - Extensive clinical and medical experience in palliative and / or neurological patient care - Currently working in palliative care or neurology - proficient in the German language (understanding, reading, answering), sufficient knowledge of English (understanding) - age >=18 - Prior study information and written informed consent

Exclusion criteria

Exclusion criteria: Patients: - Cognitive or communicative impairment such that the requirements of the study cannot be met even with the addition of medical aids - Limited life expectancy of a few days - Absence or subsequent withdrawal of consent to take part in the interview Health care professionals: - Missing or subsequently withdrawn consent to participate in the study

Design outcomes

Primary

MeasureTime frame
The aim is the cross-cultural adaptation and translation of the IPOS Neuro-S8. To this end, both health care professionals working in neurological and / or palliative patient care will be interviewed by means of semi-structured interviews and a panel of experts will be held (scheduled for June and July 2020).

Countries

Germany

Contacts

Public ContactKim Dillen

Zentrum für Palliativmedizin

kim.dillen@uk-koeln.de+49 221 478 85910

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026