G35
Conditions
Interventions
Group 1: Persons with MS are asked once through an online questionnaire about, for example, their satisfaction with the quality of care, their quality of life, their general health status and their ne
Sponsors
Medizinische Hochschule Hannover, Institut für Epidemiologie, Sozialmedizin und Gesundheitssystemforschung
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: - relapsing or progressive forms of MS - Residence in the Federal State of Lower Saxony
Exclusion criteria
Exclusion criteria: insufficient knowledge of the German language
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Quality of care from the patient perspective | — |
Secondary
| Measure | Time frame |
|---|---|
| - Care needs in Lower Saxony (indicators: total number of MS patients, distribution of forms and severity, average number of relapses, among others) - Care needs from the patient perspective o Doctor-patient communication o Holistic approach, appropriateness, accessibility, time/location based care structures o Family/occupation planning (future perspective) - Regional comparisons of supply structures and processes o Number of neurologists in Lower Saxony and their regional distribution o Number of relapses per year and waiting time until treatment stratified by region o Number of indication-related hospitalisations stratified by region - Care of the sick, the use of services and the costs depending on the form of the disease, the degree of disability and the duration of the illness and the region - Patient Reported Outcomes (PRO) such as general health status, health-related quality of life | — |
Countries
Germany
Contacts
Public ContactChristian Krauth
Medizinische Hochschule Hannover, Institut für Epidemiologie, Sozialmedizin und Gesundheitssystemforschung
Outcome results
None listed