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German Registry for Marginal Zone Lymphoma and Follicular Lymphoma

German Registry for Marginal Zone Lymphoma and Follicular Lymphoma

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00021517
Enrollment
1500
Registered
2020-05-05
Start date
2015-03-12
Completion date
Unknown
Last updated
2026-04-27

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

C83 C82

Interventions

Group 1: Routine examinations only. Time from initial diagnosis. Data collection: - Pathology - Diagnostics (CT, MRT, Sono, Labor, etc.) - Radiology - therapy (first line, second line, etc., maintena

Sponsors

Universitätsklinikum Ulm
Lead Sponsor

Eligibility

Sex/Gender
All
Age
18 Years to 99 Years

Inclusion criteria

Inclusion criteria: Confirmation of histological diagnosis of MZoL and FL by a reference pathologist. Consent form signed by the patient.

Exclusion criteria

Exclusion criteria: Lack of consent. Lack of legal capacity or insight. Inclusion of active therapy of FL in a clinical trial.

Design outcomes

Primary

MeasureTime frame
Experience in the sense of gaining knowledge on the ground of daily practice is to be gathered based on an accompanying project of the reference pathologists, which in turn contributes to quality assurance. The existing exchange of experience within the scope of the pilot phase of the registry is to be extended and expanded to the FL, and experiences from registry activities are to be passed on promptly, which ultimately also serves the purpose of care and quality assurance.

Secondary

MeasureTime frame
The current register with the participating centres offers the chance to establish a national biobank for the relatively rare entity of the MZoL. The aim would be to establish the collection of biomaterials through the register.

Countries

Germany

Contacts

Public ContactJacqueline Gökeler

Universitätsklinikum UlmInstitut für Experimentelle Tumorforschung

lymphom.register@uniklinik-ulm.de073150065827

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: May 1, 2026