patients (= 18 years) with oncological and non-oncological diseases such as organ insufficiencies, degenerative neurological diseases and sufficient physical and mental capacity to participate
Conditions
Interventions
Group 1: Patient and family caregiver survey via questionnaire with (1) a Discrete Choice Experiment (DCE), (2) socio-demographic/disease-related data as well as (3) for family caregivers, data on the
Sponsors
Medizinische Hochschule Hannover, Institut für Allgemeinmedizin und Palliativmedizin
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Patients (at least 18 years of age) who are currently hospitalised or have been hospitalised in the last 12 months with a potentially palliative progression of their illness and their relatives will be included. Patients with oncological and non-oncological diseases such as organ insufficiencies, degenerative neurological diseases are included if they have sufficient physical and mental capacity to participate. The participating patients should not (yet) be in a specific palliative or hospice care situation in order to be able the prospective evaluation of different scenarios. After having received detailed information about the type, content and purpose of the study and their participation, patients and/or their relatives sign a written agreement on their participation. Individuals of all genders (f/m/d) and ethnic backgrounds may participate in the study.
Exclusion criteria
Exclusion criteria: Exclusion criteria are (1) patients in a palliative or hospice care situation and their relatives, (2) insufficient German language proficiency to complete the questionnaire (Discrete Choice Experiment) and/or (3) no consent to participate in the study.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| overview of patients' and family caregivers' preferences regarding ambulatory palliative care services The overview is gained by means of a questionnaire (decision sets in Discrete Choice Experiment). Answers will be evaluated using economic methods (regression models). | — |
Countries
Germany
Contacts
Public ContactHanna Röwer
Medizinische Hochschule Hannover, Institut für Allgemeinmedizin und Palliativmedizin
Outcome results
None listed