Patients with congenital heart defects are interviewed at the outpatient department. According to the ICD-10 coding, the diagnoses Q.20 to Q.26 are therefore relevant. Q20 Q21 Q22 Q23 Q24 Q25 Q26
Conditions
Interventions
Group 1: Patients with congenital heart defects and Primary care physicians are asked once about their disease, care characteristics and quality of life (EQ5D-5L), using a questionnaire developed spec
Sponsors
Klinik für angeborene Herzfehler und Kinderkardiologie Deutsches Herzzentrum München
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: The study will include adults (18 years of age and older) with a congenital heart defect (ACHD), regardless of whether the defect is native or has been surgically and/or interventionally treated. In Addition family doctors/general practitioners/practical physicians or general interns with practice location in Germany are included.
Exclusion criteria
Exclusion criteria: Refusal by the patient to participate in the study, patients with cognitive impairments, or patients with language barriers that prevent them from understanding the study, or lack of informed consent.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| During the ongoing questionnaire survey questions are to be answered by both groups (affected patients and primary care general practitioners, internists) as far as possible: - Are ACHD adequately cared for at the level of the primary care provider? - What is the "real-life" care of ACHD in Germany like? - Who provides primary medical care for ACHD? - Are these patients in medical care at all? - If there is medical care, is it provided by a family doctor or general practitioner? - Are patients in the sole care of a family doctor or general practitioner, although they could be connected to special outpatient departments? - Are primary care providers aware of the importance of residual and subsequent conditions in CHD? - Are GPs or general practitioners sufficiently informed about the existing specific care structures for these patients (certified specialists)? - Will further referrals be made to appropriately qualified institutions if cardiological problems arise? - Is referral to appropriately qualified institutions if non-cardiological problems occur but their course may be influenced by the underlying heart defect? - How can the medical care of those affected be improved? - Are there problems with the prescription of high-priced drugs? | — |
Countries
Germany
Contacts
Public ContactHarald Kaemmerer
Klinik für angeborene Herzfehler und Kinderkardiologie Deutsches Herzzentrum München
Outcome results
None listed