Quality of life and participation in social life with special regard to cognitive function of patients who experienced an Arteriovenous Malformation during childhood. A long-term follow-up

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00017594

Enrollment

Registered

2019-07-08

Start date

2019-07-15

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Q28.2

Interventions

Group 1: Cognitive performance (academic achievement, occupation, memory test) social environment in patients with bleeding from arteriovenous malformation (at the time of the event (retrospective), a

Compensation of neurological deficits with the question of whether the age at the time of the event is an essential factor for the recovery process.

Eligibility

Sex/Gender

All

Age

19 Years to No maximum

Inclusion criteria

Inclusion criteria: Arteriovenous Malformation during childhood

Exclusion criteria

Exclusion criteria: no Arteriovenous Malformation during Childhood

Design outcomes

Primary

Measure	Time frame
Main question: Patients who have had a bleeding in childhood recover very well in long term follow-up and compensate neurological deficits very well. Younger children recover faster and more adequately than young adults Target sizes Main target: clinical outcome using Quality of Life Scoe (QLS) I.a. and the Neuropsychological Screening Test (NST)	—

Secondary

Measure	Time frame
Adverse question: The social quality of life is significantly influenced by the course of the disease. Patients with incidental AVM serve as a control group. Secondary objective: to determine prognostic factors	—

Countries

Germany

Contacts

Public ContactNazife Dinc

Goethe Universitätsklinik Frankfurt

nazife.dinc@kgu.de069-6301-5295

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026