Strengthening patient competency through cancer self-help: needs assessment and development of support services

Strengthening patient competency through cancer self-help: needs assessment and development of support services - exPEERtise / eKSPlore

Status

Active, not recruiting

Phases

Unknown

Study type

Interventional

Source

DRKS

Registry ID

DRKS00017500

Enrollment

Registered

2019-12-12

Start date

2020-04-01

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

C00-C97

Interventions

Group 1: Coaching-Project: Step 1: Developing a training for cancer survivors which prepares them for non-professional counseling of cancer patients in an acute phase of cancer treatment. The training

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: 1. Supported patients: Cancer patients in an earlier stage of cancer treatment in oncological centres. 2. Non-professional patient counsellors: former cancer patients who have already completed therapy and rehabilitation - with the exception of hormonal therapy. All non-professional patient counsellors went through a personal interview and participated in the training program. 3. Agreement to participate in the study 4. Age of consent 5. Good knowledge of the German language

Exclusion criteria

Exclusion criteria: Excluded from the study are minors, potential participants with language barriers, severe cognitive impairments or severe mental illness that make a participation in the study impossible.

Design outcomes

Primary

Measure	Time frame
Coaching project: The study is a pilot scheme for developing a training program for former cancer patients in order to support cancer patients in an earlier stage of cancer treatment. Due to the explorative character and the small case numbers, this study focuses on formative aspects of the evaluation. Thus, this study aims to examine mainly process characteristics of the preparatory event, the training program itself and the non-professional counselling sessions. The questionnaires for the evaluation of the program are developed based on semi-structured interviews with representatives of local cancer support groups. Needs analysis: This is a mixed-methods study (interview and questionnaire study) in which structures and current developments of cancer self-help as well as experiences and views of those affected with regard to cancer self-help services are recorded. Likewise, possible access barriers to cancer self-help and current needs of target groups are to be determined.	—

Measure

Time frame

Coaching project: The study is a pilot scheme for developing a training program for former cancer patients in order to support cancer patients in an earlier stage of cancer treatment. Due to the explorative character and the small case numbers, this study focuses on formative aspects of the evaluation. Thus, this study aims to examine mainly process characteristics of the preparatory event, the training program itself and the non-professional counselling sessions. The questionnaires for the evaluation of the program are developed based on semi-structured interviews with representatives of local cancer support groups. Needs analysis: This is a mixed-methods study (interview and questionnaire study) in which structures and current developments of cancer self-help as well as experiences and views of those affected with regard to cancer self-help services are recorded. Likewise, possible access barriers to cancer self-help and current needs of target groups are to be determined.

—

Secondary

Measure	Time frame
There is no secondary outcome.	—

Countries

Germany

Contacts

Public ContactAlice;Joachim Valjanow;Weis

Universitätsklinikum Freiburg Tumorzentrum Freiburg - CCCF Stiftungsprofessur Selbsthilfeforschung;Universitätsklinikum Freiburg Tumorzentrum Freiburg - CCCF Stiftungsprofessur Selbsthilfeforschung

alice.valjanow@uniklinikum-freiburg.de;joachim.weis@uniklinik-freiburg.de+49 761 27071565;+49 761 270-71563

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 6, 2026