C00-C97 Z51.5
Conditions
Interventions
Group 1: Patients group 1: Patients who provide informed written consent to participate in the present implementation study:
- Completion of the IPOS (Integrated Palliative Care Outcome Scale) questio
then every 7 days and if the course of the disease/symptoms are significantly changing (if needed)
last questionnaire should be completed before the end of hospital treatment or during/after the seventh week of treatment in outpatient settings
via paper questionnaire or by the use of the web application Cankado
- Clinical use and clinical embedding of patient information deriving from the questionnaires in patient care and treatment by the
the corresponding evaluations cannot be meaningfully performed, therefore the 5 participants are listed as "non-participants".
Group 3: Patients Group 3, simplified study design:
- One-time data col
Sponsors
Universitätsklinikum Freiburg, Klinik für Palliativmedizin
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Patients with oncological diagnoses and / or palliative patients who Group 1 + 3: give informed written consent to participate in the present project Group 2: give informed written consent regarding the documentation of sociodemographic and disease-related information as well as the documentation of their reasons for not participating in the present project Study Nurses and professionals who - are directly or indirectly (e.g. during team meetings) involved in the assessment and clinical use of PCOMs during the project - are willing to participate
Exclusion criteria
Exclusion criteria: Patients - with unsufficient German language skills - during the final phase/ the last days of life - with cognitive and/or physical limitations that prevent them from providing answers to the questions on the IPOS themselves or to family members and professionals who may support them during the completion of the questionnaire practicioners - with less than one month of working experience in the corresponding institution/service during the implementation process - who became involved in patients' treatment during their work as temporary worker or consultant or in the course of their work for an external service
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Feasibility and acceptance from patients' and professionals' point of view regarding the integration into everyday's routine, acceptance and user-friendliness: - Assessment of the frequency of questionnaires' use and the completeness of provided data - Questioning of patients by the study nurses in order to evaluate patient’s previous experiences with new media and aditionally questioning of those patients who used the web application for PCOM recording after first or second recording in order to identify need of support and difficulties in use - Written survey evaluation of all patients at the end of treatment (or during their 7th week of treatment) regarding their experiences with PCOM recordings during the course of the project and evaluation of the wish for further use/PCOM recordings 2. Effects of the (web-based) recording of PCOMs on the identification of patients' problems, health care processes, communication between professionals and patients, team communication, individual treatment success (e.g. with respect to quality of life, symptom control): - At the beginning of treatment, professionals identify and mark previously unknown symptoms and burdens (and/or their severity) - Evaluation of checklists - Written survey evaluation of all study nurses and professionals as well as in-depth guideline oriented interviews with the study nurses and two to five professionals per ward or care service | — |
Secondary
| Measure | Time frame |
|---|---|
| Specificity and sensitivity, predictive value as well as area under the curve (AUC) in the ROC analysis as measures of the quality of the prediction of palliative treatment need based on the data on the IPOS and professionals' answering of the surprise question ("Would you be surprised if this patient died in the next year?") | — |
Countries
Germany
Contacts
Public ContactBettina Couné
Universitätsklinikum Freiburg, Klinik für Palliativmedizin
Outcome results
None listed