Evaluation of the impact of a disease specific informational meeting on disease related knowledge, health conditions and disease perception of patients with systemic lupus erythematosus (SLE) and granulomatosis with polyangiitis (GPA)

Evaluation of the impact of a disease specific informational meeting on disease related knowledge, health conditions and disease perception of patients with systemic lupus erythematosus (SLE) and granulomatosis with polyangiitis (GPA) - InfoLupGraPA

Status

Active, not recruiting

Phases

Unknown

Study type

Interventional

Source

DRKS

Registry ID

DRKS00016603

Enrollment

100

Registered

2019-10-10

Start date

2019-05-27

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

M32.9 M31.3

Interventions

Group 1: patients with systemic lupus erythematosus and granulomatosis with polyangiitis: Intervention group Group 2: patients with systemic lupus erythematosus and granulomatosis with polyangiitis: W

Eligibility

Sex/Gender

All

Age

18 Years to 90 Years

Inclusion criteria

Inclusion criteria: Valid diagnosis of 1.) systemic lupus erythematosus or 2.) granulomatosis with polyangiitis - Adult patients of at least 18 years -Fluent understandig of German language - Willingness to takt part in the informational meeting and the survey

Exclusion criteria

Exclusion criteria: - High disease activity or comorbid condition that prevents the patient from being capable to take part in the intervention - Severe reduction of intelligence that renders the perception of information impossible.

Design outcomes

Primary

Measure	Time frame
disease knowledge	—

Secondary

Measure	Time frame
perception of disease, health condition	—

Countries

Germany

Contacts

Public ContactFlorian;Annika Schmidt;Pilz

Universitätsklinikum Halle (Saale)Department für Innere MedizinKlinik und Poliklinik für Innere Medizin II;Universitätsklinikum Halle (Saale)Department für Innere MedizinKlinik und Poliklinik für Innere Medizin II

flo.tt@web.de;annika-pilz@mail.de+49 152 31748146;+49 170 5562509

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026