Oral function in Patients with Spinal Muscular Atrophy

Conditions

G12.1

Kruse T, Leflerovà D, Cap A, Portegys S, Wirth B, Heller R, Brakemeier S, Hagenacker T, Braumann B, Wunderlich G.

2024-10-151 citations

Objective measurement of oral function in adults with spinal muscular atrophy.

Kruse T, Shamai S, Leflerovà D, Wirth B, Heller R, Schloss N, Lehmann HC, Brakemeier S, Hagenacker T, Braumann B, Wunderlich G.

2023-05-037 citations

10.1186/s13023-023-02688-4

Interventions

Group 1: We measure oral function (maximum bite force and endurance, maximum tongue pressure and endurance, maximum mouth opening) in patients with spinal muscular atrophy that are treated with Nusine

Eligibility

Sex/Gender

All

Age

18 Years to 50 Years

Inclusion criteria

Inclusion criteria: Patients with spinal muscular atrophy type I, II or III.

Exclusion criteria

Exclusion criteria: Maxmimum mouth opening < 8mm

Design outcomes

Primary

Measure	Time frame
Relative changes in oral function. Measured with piezoelectric transducers and an IOPI hendheld device. Measurements are repeated over the course of one year.	—

Secondary

Measure	Time frame
Relative change of oral function: maximum mouth opening, measured by a ruler.	—

Countries

Germany

Contacts

Public ContactTeresa Kruse

Poliklinik für Kieferorthopädie, Uniklinik Köln

teresa.kruse@uk-koeln.de0049 221 478 4712

Outcome results

None listed