psychological distress C81-C96
Conditions
Interventions
Group 1: Retrospective qualitative analysis of interview transcriptions of parents of AYA patients and quantiative survey ot these parents using questionnaire data.
Sponsors
Universitätsklinikum Magdeburg, Zentrum für Innere Medizin, Klinik für Hämatologie und Onkologie
Eligibility
Sex/Gender
All
Age
18 Years to 40 Years
Inclusion criteria
Inclusion criteria: 1) parents of AYA patients with hematologic malignant neoplasms who participated in the intervention group of the "AYA-PARENTS" study (inclusion criteria: a. acute / chronic hematologic malignant disease (ICD-10-C-diagnoses) AND / OR b. ambulatory / stationary treatment c. ECOG performance status = 2 d. AYA patients age 18-40 years e. sufficient command of the German language f. sufficient cognitive ability to understand diagnosis and treatment g. written and oral information to the intervention study h. written consent 2) participation at t0 (basis documentation before randomization) and t1 (baseline measurement with first questionnaires) of the "AYA-PARENTS" study 3) participation at least at one intervention session of the "AYA-PARENTS" study
Exclusion criteria
Exclusion criteria: none, if included in "AYA-PARENTS"
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Retrospective determination of parental exposure profiles using qualitative evaluation methods (qualitative content analysis, grounded theory, ideal type formation) | — |
Secondary
| Measure | Time frame |
|---|---|
| Validation of the parental exposure profiles with quantitative data for depression, distress, health related quality of life from the following questionnaires (postal survey since May 2019) a. Depression: Patient Health Questionnaire (PHQ-9, Gesundheitsfragebogen nach Löwe) b. Psychological distress: Distress-Thermometer (DT, Roth et al.) c. Anxiety: Generalized Anxiety Disorder Scale (GAD-7) d. Fear of Progression: Progredienzangst-Fragebogen für Eltern krebskranker Kinder (PA-F-KF/E); Progredienzangst-Fragebogen für chronisch kranke Erwachsene (PA-F-KF) e. Cancer specific posttraumatic stress: Fragebogen zur krebsspezifischen posttraumatischen Belastung (PTB-KS, Bölter et al.) f. Health related quality of life: MOS-36 Item Short Form Health Survey (SF-36) Can we identify risk cases and constellations based on the parental exposure profiles even if the psychological condition of the parents or the AYA patients is not yet showing psychopathological abnormities according to a cut-off based determination of prevalence? | — |
Countries
Germany
Contacts
Public ContactMichael Köhler
Universitätsklinikum Magdeburg, Zentrum für Innere Medizin, Klinik für Hämatologie und Onkologie
Outcome results
None listed