Lung disease
Conditions
Interventions
Group 1: On the basis of interviews, which are transcribed, it should first be found out how relatives experience the daily routine with those affected with such a PleurX™ drainage and to what extent
Sponsors
Albert - Ludwigs - UniversitätMedizinische Fakultät, Institut für Pflegewissenschaft
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: - at least 18 years old; - Patients have been implanting permanent PleurX™ drainage for at least three months; - completely oriented to place, time, person and situation; - the German language in word and writing powerful; - Family decides for itself, who takes part in the interview, this can, apart from relatives or partners, also close confidants, for example from the neighborhood, be; - Residence of participants: radius of Freiburg, not more than 100 km.
Exclusion criteria
Exclusion criteria: - Palliative patients; - refusal of participation
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The aim of this study is to find out how family members of patients with permanent PleurX™ drainage experience and manage self-management. The basis for this are the six skills of self-management, covering all important aspects of this topic. Based on the transcribed interviews, which are carried out in the semi-structured and narrative style, the observation protocol of the environment or abnormalities and the listed family constellation to determine how well or how bad the self-management works from the point of view of the relatives. It also aims to arouse the understanding of which motives the relatives support, whereby they provide exactly support, how they feel about it and what kind of support they need. | — |
Secondary
| Measure | Time frame |
|---|---|
| The ultimate goal is to promote understanding of relatives in the self-management of drainage. In addition, the results could be used to derive possible support needs, such as inadequate information sharing or guidance through emotional components such as insecurity, anxiety, etc., which in turn should be minimized or even eliminated. From this, for example, new training programs can be developed. Based on the results of the present project, important information can be obtained for this intervention development (education of patients and relatives) that could be of great benefit, especially with regard to the family. | — |
Countries
Germany
Contacts
Public ContactChristoph Liebhardt
Albert - Ludwigs - Universität Freiburg / Universitätsklinikum FreiburgMedizinische Fakultät, Institut für Pflegewissenschaft / Klinik für Thoraxchirurgie
Outcome results
None listed