Detection of pain-associated, rare diseases by pain-drawing (Ehlers-Danlos-Syndrom, Guillain-Barré-Syndrom)

Detection of pain-associated, rare diseases by pain-drawing (Ehlers-Danlos-Syndrom, Guillain-Barré-Syndrom) - DssEmS1

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00014777

Enrollment

Registered

2018-06-01

Start date

2017-06-01

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Q79.6 G61.0

Interventions

Group 1: Patients over 18 years with assured diagnoses Ehlers-Danlos-Syndrome or Guillain-Barré-Syndrome receive an informed consent, a questionnaire to describe their pain and a pain-drawing, which t

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: assured diagnosis (Ehlers-Danlos-Syndrom, Guillain-Barré-Syndrom), signed informed consent

Exclusion criteria

Exclusion criteria: age under 18, no informed consent, diagnosis not assured

Design outcomes

Primary

Measure	Time frame
No outcome defined. The aim of the study is to identify repetitive patterns in pain-drawings of patients with rare diseases and thus investigate whether the detection of rare diseases can be accelerated by pain-drawing. The minimum number of participants is 30 / disease.	—

Secondary

Measure	Time frame
no outcome defined	—

Countries

Germany

Contacts

Public ContactLarissa Wester

Zentrum für seltene Erkrankungen Bonn

s4lawest@uni-bonn.de0228/287 51070

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 17, 2026