Burden of care
Conditions
Interventions
Group 1: Intervention group:
Participants in the intervention group receive a stepped intervention over 9 months and monthly information letters with care specific information throughout the intervent
Sponsors
Robert-Bosch-Krankenhaus, Klinik für Geriatrische Rehabilitation
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Inclusion criteria regarding care recipient: a) 60 years or older b) Level of care (German "Pflegegrad") 1-5 c) Member of AOK long-term care insurance For caregiver: a) 18 years or older b) Provides care, support or supervision (including travel time) for the care recipient for at least 1.5 hours per day or at least 10.5 hours per week c) Has telephone access d) Is able to communicate via telephone e) Positive screening if two out of three questions regarding high level of burden answered with yes ((1) Care-related physical or mental health problems, (2) Loneliness, (3) Burden of care).
Exclusion criteria
Exclusion criteria: Exclusion criteria regarding care recipient: a) Lives in a nursing home b) Plans to move to a nursing home within the next three months c) Palliative care d) Terminal disease (life expectancy < 6 months) For caregiver: a) Received care counseling (incl. provision plan) within the last six months b) Severe unstable or progressive disease c) Insufficient German language skills d) Currently receiving psychotherapy e) Enrollment in another study for caregivers and / or with psychosocial/psychotherapeutic intervention f) Severe psychiatric diagnosis g) Apparent cognitive impairments
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Depressive symptoms (Center for Epidemiological Studies Depression Scale (CES-D) measured at all 4 time points | — |
Secondary
| Measure | Time frame |
|---|---|
| - Physical complaints (Gießener Beschwerdebogen (GBB; Brähler, Hinz, & Scheer, 2008)) - Health-related quality of life (Veterans Rand 12 (VR-12; Kazis et al., 2004; Buchholz & Kohlmann, 2015) - Utilization of psychosocial resources (2 adapted scales from “the Psychosocial Resource Utilization Questionnaire” (Trösken & Grawe, 2003): Utilization of resources related to well-being (9 items), utilization of resources related to coping with daily hassles (14 items; Töpfer, Sengewald, & Wilz, in prep., Töpfer & Wilz, subm.) - Emotional well-being (visual analogue scale; Wilz & Soellner, 2016) - Self-efficacy (Abbreviated Sense of Competence Questionnaire; Pendergrass et al., 2015; subscales "satisfaction with one's own performance", "consequences of involvement in care for the caregiver's life") - Coping with problems (Social problem-solving inventory - revised (SPSI-R; D'Zurilla, Nezu, & Maydeu-Olivares, 2002; Graf, 2003; subscale "negative problem orientation") - Quality of relationships (1 question) - "Coping with the care situation" (1 question) - Positive aspects of caregiving (6 questions) - Perceived quality of care (care (14 questions), abusive behavior (8 questions)) - Health economic evaluation Assessments are measured at all 4 time points | — |
Countries
Germany
Contacts
Public ContactGabriele Wilz
Friedrich-Schiller-Universität Jena, Institut für Psychologie, Abteilung für Klinisch-Psychologische Intervention
Outcome results
None listed