C11.1 C11.2 C11.3 C11.8 C11.9
Conditions
Interventions
Group 1: (1) Collect epidemiological information,
(2) Collect information on treatment and outcome to determine whether a relationship exists between outcomes and specific interventions, (3) Collect
Sponsors
Sektion Pädiatrische Hämatologie, Onkologie und Stammzelltransplantation, Klinik für Kinder- und Jugendmedizin, Uniklinik RWTH Aachen
Eligibility
Sex/Gender
All
Age
0 Years to No maximum
Inclusion criteria
Inclusion criteria: -Confirmed diagnosis of nasopharyngeal carcinoma in patients = 18 years or EBV-positive nasopharyngeal carcinoma WHO Typ IIb or III in patients older than 18 years of age -Informed consent by legal guardians and/or patient to contribute data to the registry
Exclusion criteria
Exclusion criteria: Absence of informed consent by legal guardians and/or patient to contribute data to the registry
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| -Collect epidemiological information -Collect information on treatment and outcome to determine whether a relationship exists between outcomes and specific interventions -Collect information on late effects and quality of life -Assess the quality of treatment by the means of data collection, data check and an advisory service provided by the registry and the reference centers -Establishment of a tumor bank as a base for further biological studies to define new risk factors and to identify new targets for therapy | — |
Secondary
| Measure | Time frame |
|---|---|
| 3-, 5- and 10-year overall and event-free survival | — |
Countries
Austria, Germany, Netherlands, Switzerland
Contacts
Public ContactUdo Kontny
Sektion Pädiatrische Hämatologie, Onkologie und Stammzelltransplantation, Klinik für Kinder- und Jugendmedizin, Uniklinik RWTH Aachen
Outcome results
None listed