Development of conversation guide, Management of desire to die in palliative care
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: step 1: patients: *life expectancy 3 to 9 months *good German speaker competency *cognitively and conditionally able to give an interview *adult *written consent experts: *Occupational group (multi-professional plus ethical experts, patient representatives) *At least 5 years of experience with DD and/or suicidality *High scores in self-assed confidence and expertise in DD step 2: HPs: *worked with palliative patients in the past year *written consent step 3: patients: *good German speaker competency *cognitively and conditionally able to give an interview *adult *written consent relatives: *relatives of palliative patients that died in the past year in Cologne *good German speaker competency *adult *written consent HPs: *used the conversation guide *worked with palliative patients in the past year *written consent
Exclusion criteria
Exclusion criteria: Patients: *life expectancy less than 3 months *not cognitively or conditionally able to give an interview All participants: *bad German speaker competency *no written consent *do not wish to partake
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Optimalization of the HP-patient relationship (questionnaires, pre: max. 1 week before conversations, post: max. 1 week after conversations, and follow-up: 4-6 weeks after conversations) PDRQ-9 – German: questionnaire assessing the HP-patient-relationship DADDS – G- Death and Dying Distress Scale German Version: assessing fears of death and dying SAHD-D – Schedule of Attitudes Towards Hastened Death German Version: assessing desire to die PHQ9- Patient Health Questionnaire: assessing depression BHS - Beck Hopelessness Scale: assessing hopelessness VAS – visual analogue scale: assessing will of life | — |
Secondary
| Measure | Time frame |
|---|---|
| Development of a conversation guide | — |
Countries
Germany
Contacts
MSH - Zentrum für Palliativmedizin Mildred-Scheel-Haus