Reconciliation between informal caregiving in dementia, family, and employment from a network-perspective and in consideration of the personal characteristics of the informal caregivers. F00 Z56 Z59 Z60 Z63 Z73
Conditions
Interventions
Group 1: Familial and non-familial caregivers related to the informal network of people with dementia living in Hamburg, Lower-Saxony, or Schleswig-Holstein, will be interviewed once.
In total, five n
Sponsors
Universitätsklinikum Hamburg-Eppendorf Institut für Gesundheitsökonomie und Versorgungsforschung
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Written informed consent; involved in caring/supervision of the individual with dementia (i.e., study participants undertake caring tasks like bathing or dressing, household tasks, and/or support in the care-related decision-making); living in Hamburg, Lower-Saxony and/or Schleswig-Holstein; appropiate German language skills; no cognitive impairments
Exclusion criteria
Exclusion criteria: The cared-for individual with dementia is not living at home (e.g., she/he is living in a nursing home)
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Themes and types based on the narratives of study participants regarding the reconciliation between informal caregiving in dementia, family, and employment. Here, study participants will be interviewed once (by using a narrative interview). | — |
Secondary
| Measure | Time frame |
|---|---|
| care-related strain (CarerQoL, ZBI), evaluation of life satisfaction (CarerQoL-VAS, EQ-5D), personality traits (NEO-FFI-30, ASKU), coping skills (PCI). These outcomes will be measured once after the interview (primary outcome) by using the named questionnaires (in brackets). | — |
Countries
Germany
Contacts
Public ContactLydia Neubert
Universitätsklinikum Hamburg-Eppendorf Institut für Gesundheitsökonomie und Versorgungsforschung
Outcome results
None listed