Death - across indications (LYOL-C) I25 F32 F40
Conditions
Interventions
Group 1: Patient survey applying the following questionnaires: PACIC, EQ-5D, HADS-D, SCID I, DemTect, SOEP, CERAD
additionally, self-developed items are used.
Face-to-face interviews with triads of patients, relatives and health care providers. Interviews regarding care trajectories, perceived quality of care, a
additionally self-developed items are used.
Face-to-face interviews with triads of patients, relatives and health care providers. Interviews regarding care trajectories, perceived quality of care, att
Sponsors
IMVR der Universität zu Köln
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: MenDis-CHD: 1.) Adults with clinical manifest coronary heart disease (i. e. status post stable or unstable angina pectoris, acute coronary syndrome, after percutaneous coronary intervention and bypass surgery). Approx. 50% of the total patient population shall be female. Approx. 30% shall have a left ventricular ejection volume of = 40% and thus have a cardiac insufficiency (Curtis et al., 2003). 2.) Relatives of these patients. LYOL-C: 1.) The bereaved of patients who had been cared for within the region of Cologne and have deceased. To the group of the bereaved, all relatives and close people are considered who cared for the respective patient and/or stood by his/her side during the last year of life. OrgValue: 1.) Employees or decision-makers of a health care organization in Cologne. 2.) Patients in Cologne All Studies: 1.) Subjects must be a German native-speaker or have adequate langue proficiency in German (incl. reading ability). 2.) Minimum age 18 years 3.) Written consent to the participation in the study
Exclusion criteria
Exclusion criteria: 1.) under 18 years of age 2.) insufficient german language knowledge 3.) profoundly instable physical and mental status 4.) missing or withdrawn consent form LYOL-C: 1.) no direct participation in the provision of care during the last year of life 2.) Accident or man-induced death
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| - care trajectories of vulnerable patient groups -degree of value-based and patientcentered care from the patients and relatives view -quality of care from the patients perspective -identification of hindering as well as facilitating factors in the delivery of value-based and patient-centered care within the organisations | — |
Countries
Germany
Contacts
Public ContactNadine Scholten
IMVR - Universität zu Köln
Outcome results
None listed