Quality of life and state of care in Dravet-Syndrome

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00011894

Enrollment

150

Registered

2017-03-16

Start date

2017-03-16

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

G40

Interventions

Group 1: Patients with Dravet-Syndrom (QoL and state of care)

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Patients with the clinical diagnosis of a Dravet-Syndrome

Exclusion criteria

Exclusion criteria: none

Design outcomes

Primary

Measure	Time frame
Quality of life, burden of disease (cost-of-illness, medical therapy)	—

Secondary

Measure	Time frame
Quality of life	—

Countries

Germany

Contacts

Public ContactAdam Strzelczyk

Epilepsiezentrum Frankfurt Rhein-Main

strzelczyk@med.uni-frankfurt.de+49-69-6301-7466

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 17, 2026