Primary Palliative Care in General Practice

Primary Palliative Care in General Practice - ALLPRAX

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00011821

Enrollment

144

Registered

2017-12-04

Start date

2017-02-20

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Severe progressive conditions at the end of life

Interventions

Group 1: Organisational health services research study for the development and evaluation of service development statements and tailored interventions Methods: Mixed-methods project with three study

Critical Incident Technique

secondary analysis of health insurance funds and clinical routine data

medical chart review and document analysis Modelling phase (month 13-36): data collection and co-construction using Participatory Action Research and consensus building techniques (Delphi and Nominal

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: General Practices: according to the principles of Theoretical Sampling, general practices will be selected along different contrasting lines (e.g. urban - rural; single - joint practice) Patients: patients in general practice in need of palliative care, who are able to give informed consent and whose general condition will allow for an interview Relatives: patients' relatives who are able to give informed consent

Exclusion criteria

Exclusion criteria: Patients whose general condition does not allow for an interview

Design outcomes

Primary

Measure	Time frame
Successful integration of primary palliative care in general practice (organisational ethnographic field research following the theoretical model of the "Normalization Process Theory"; NoMAD (assessment Instrument for the Evaluation of the implementation of complex interventions))	—

Secondary

Measure	Time frame
Place of death; hospital admissions; prescriptions and therapies (clinical routine data from medical charts); physical, psychological and emotional well-being, as well as quality of treatments and care coordination (Palliative Outcome Scale POS; Quality of Dying and Death Questionnaire; Quality of End of Life Care Questionnaire; semi-structured interviews with patients and relatives); details in Table 2, p. 15 in the attached study protocol	—

Measure

Time frame

Place of death; hospital admissions; prescriptions and therapies (clinical routine data from medical charts); physical, psychological and emotional well-being, as well as quality of treatments and care coordination (Palliative Outcome Scale POS; Quality of Dying and Death Questionnaire; Quality of End of Life Care Questionnaire; semi-structured interviews with patients and relatives); details in Table 2, p. 15 in the attached study protocol

—

Countries

Germany

Contacts

Public ContactStephanie Stiel

Medizinische Hochschule Hannover

Stiel.Stephanie@MH-Hannover.de+49 - (0)511 - 532 45 48

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Mar 7, 2026