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Lupus long-term study (LuLa) - extension of a cross-sectional study with initiation of an inception cohort

Lupus long-term study (LuLa) - extension of a cross-sectional study with initiation of an inception cohort - LuLa

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00011052
Enrollment
700
Registered
2016-10-04
Start date
2011-12-22
Completion date
Unknown
Last updated
2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

M32

Interventions

Group 1: The study is conducted using an annual, pseudonymized postal survey with partly variable questionnaires on different aspects of disease (e.g. physical and mental quality of life, disease acti

Sponsors

Heinrich-Heine Universität Düsseldorf
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: - Return of the questionnaire AND - Diagnosis of systemic lupus erythematosus by a physician

Exclusion criteria

Exclusion criteria: Not being able to read or fill in paper questionnaires.

Design outcomes

Primary

MeasureTime frame
Quality of life (physical and mental) is surveyed annually by a validated questionnaire. Descriptive, univariable and multivariable analysis are being conducted for evaluation.

Secondary

MeasureTime frame
Treatment, disease activity, concomitant diseases, physical functioning, pain and disease flares are surveyed using appropriate questionnaires and analyzed annually. Other secondary endpoints are analyzed sporadic due to annually changing focus topics in the survey (e.g. costs, damage, depression, hospitalizations, physical activity, fatigue, sleep disorders, work productivity, vaccination status). Descriptive, univariable and multivariable analysis are being conducted.

Countries

Germany

Contacts

Public ContactGamal Chehab

Policlinic for Rheumatology & Hiller Research Centre for Rheumatology; Heinrich-Heine University Duesseldorf

LuLa-Studie@rheumanet.org0211/8118068

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 24, 2026