Q61.1 Q61.3 Q61.8 Q61.9 Q87.5 Q87.8 Q77.2 Q77.6 Q77.9
Conditions
Interventions
Group 1: The clinical data of all patients with the above mentioned diseases will be documented and followed-up once a year.
Additionally they can provide biological samples and participate in diverse
Sponsors
Universitätsklinikum Münster, Klinik für Kinder-und Jugendmedizin, Allgemeine Pädiatrie, Leiter Pädiatrische Nephrologie, Stellvertretender Direktor Allgemeine Pädiatrie
Eligibility
Sex/Gender
All
Age
No minimum to 18 Years
Inclusion criteria
Inclusion criteria: all patients with the above ICD-10 codes
Exclusion criteria
Exclusion criteria: all patients presenting other diseases than the ones presented above
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The primary objective of the multidisciplinary network NEOCYST is to improve the life of patients and their families affected by hereditary cystic kidney diseases by increasing our knowledge of the epidemiology, genetics, molecular pathophysiology and long-term outcomes of pediatric cystic kidney disease with and without extrarenal manifestations. | — |
Countries
Austria, Germany, Switzerland
Contacts
Public ContactJens König
Universitätsklinikum Münster, Pädiatrische Nephrologie
Outcome results
None listed