D83
Conditions
Interventions
Group 1: Patients with common variable immunodeficiency (CVID) complete one questionnaire in terms of their workability, quality of life, health literacy, infections and socio-demographic characterist
Sponsors
Universitätsklinikum Freiburg, Centrum für Chronische Immundefizienz (CCI) am Zentrum für Translationale Zellforschung (ZTZ), Clinical Research Unit
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Informed consent available
Exclusion criteria
Exclusion criteria: (1) Patient with a serious progressive course of disease and short life expectancy. (2) Insufficient comprehension of German language.
Design outcomes
Secondary
| Measure | Time frame |
|---|---|
| (1) Statistical correlation of workability, quality of life and health literacy. (2) Identification of risk groups of impaired workability. (3) Data generation for the development of a patient program to enhance the health literacy and to foster the workability of patients with CVID. | — |
Primary
| Measure | Time frame |
|---|---|
| Description of the workability of patients with common variable immunodeficiency (CVID) assessed by the patient self-evaluated “Workability Index” (WAI) and by parts of the “Indicators of the Rehabilitation Status” (IRES). | — |
Countries
Germany
Contacts
Public ContactAlexandra Nieters M.P.H
Universitätsklinikum Freiburg, Centrum für Chronische Immundefizienz (CCI) am Zentrum für Translationale Zellforschung (ZTZ), Clinical Research Unit
Outcome results
None listed