Young onset dementia (before age 65 years) F00.0 F02.0
Conditions
Interventions
Group 1: Web-based e-learning programme für carers of people with early-onset dementia for 6 weeks. The programme consists of 7 parts:
1. What is young onset dementia?
2. A medical perspective on youn
Sponsors
Institut de la Mémoire et de la Maladie d’Alzheimer, Hôpital Pitié Salpêtrière
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Primare informal carers of patients with dementia in Alzheimer's disease or behavioural-variant frontotemporal dementia and an onset before the age of 65 years, age over 18 years, basic computer literacy, access to computer and internet
Exclusion criteria
Exclusion criteria: Carers of people with other dementia
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| All data will be assessedat baseline as well in weeks 6 and 12 in caregivers: Self-efficacy (Revised Scale for Caregiving Self-Efficacy, RSCSE); Disease-related knowledge (Coping With the Caregiving Role Questionnaire, self-designed). | — |
Secondary
| Measure | Time frame |
|---|---|
| All data will be assessed at baseline as well as in weeks 6 and 12 in carers: Stress (Perceived Stress Scale, PSS); Health-related quality of life (EuroQol EQ-5D-5L); Burden (Burden Scale for Family Caregivers, BSFC) Patient symptoms (Revised Memory and Behaviour Checklist, RMBC); Technology acceptance (Technology Acceptance Model, TAM, adapted). | — |
Countries
France, Germany, United Kingdom
Contacts
Public ContactJanine Diehl-Schmid
Klinik für Psychiatrie und PsychotherapieKlinikum rechts der IsarTechnische Universität München
Outcome results
None listed