patients within the weaning category "prolonged weaning" group 3c ("weaning failure") or patients after an elective initiation of invasive home mechanical ventilation (HMV) J96.11 J96.10 Z99.1
Conditions
Interventions
Group 1: Patients after prolonged weaning or after an initiation of a home mechanical ventilation therapy receive an intersectoral care concept. This concept is comprised of the following components:
Sponsors
Charité Universitätsmedizin Berlin
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: • invasive home mechanical ventilation • male or female adults (=18 years when admited to Charité university hospital (CharitéCenter 12 or 07) • transfer to the REMEO-Center (Berlin) after the patient has given an informed consent
Exclusion criteria
Exclusion criteria: • patients unable to give consent • lack of understanding the German language • court-ordered civil committment to an approved institution • staff of the Charité university hospital • declined informed consent that pseudonymised data may be stored and relayed within the scope of this clinical study
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| proof of principle of an intersectoral care concept with the following outcome: 1. Improvement of intersectoral (outpatient and clinical) communication and collaboration, especially concerning the multiprofessional care-team (physicians, nurses, therapists) 2. Optimizing the data for outcome, quality of life readmission rate etc. by incorporating the experiences and views of patients (interviews). 3. Evaluation of guideline-based processes in home mechanical ventilation by developing and measuring key performance indicators and quality indicators and thereby 4. development of evidence in regard to the care situation of patients on long-term home mechanical ventilation 5. Optimizing the use of resources (gentle use of limited resources in light of the demographic change, lack of nurses and physicians and financial resources) by early identification of weaning potential and prevention of readmission 6. Cost savings by preventing “revolving dorr effect” | — |
Secondary
| Measure | Time frame |
|---|---|
| 7. Improvement of self-determination and patient autonomy of the chronically critically ill by facilitating communication to care-givers and family members 8. Empowerment of family members and patients; strengthening of the sense of security; electronic delivery of accessible training material of Linde REMEO for patients, nurses and family members which can be viewed on tjhe PAUL-Tablet in PDF-format. | — |
Countries
Germany
Contacts
Public ContactSimone Rosseau
Charité Universitätsmedizin BerlinCharité Campus Charité MitteMed. Klinik m.S. Infektiologie und Pneumologie
Outcome results
None listed