Characterization of Autosomal Dominant Polycystic Kidney Disease (ADPKD) in childhod: retrospective clinical data assessment and evaluatin of psychosocial aspects

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00009419

Enrollment

Registered

2016-01-05

Start date

2016-01-05

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Autosomal Dominant Polycystic Kidney Disease (ADPKD) Q61.2

Interventions

Group 1: observational trial Characterization my means of existing clinical, biochemical and genetic data of ADPD patients. By evaluation of a questionnaire psychosocial aspects of patients and their

Eligibility

Sex/Gender

All

Age

No minimum to 17 Years

Inclusion criteria

Inclusion criteria: Clinical diagnosis of ADPKD

Exclusion criteria

Exclusion criteria: Uncertain clinical diagnosis. Other cystic kidney diseases.

Design outcomes

Primary

Measure	Time frame
n/a - observational study on clinical course. Patient's quality of life will be assessed by a questionnaire (KINDL for the assessment of health related quality of life ) once.	—

Secondary

Measure	Time frame
does not apply - purely descriptive	—

Countries

Germany

Contacts

Public ContactMax Liebau

Unikinderklinik KölnPädiatrische Nephrologie

max.liebau@uk-koeln.de0221-478-4319

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026