Identification of promoting and impedimental factors of social participation for people with rheumatic diseases based on a mixed-method design

Identification of promoting and impedimental factors of social participation for people with rheumatic diseases based on a mixed-method design - inForm

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00008323

Enrollment

500

Registered

2015-06-25

Start date

2015-04-01

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Rheumatic diseases M00-M99

Interventions

Group 1: Based on a modified instruction regarding disease-related conversations, communication deficits in these kinds of situations are assessed online on Insecure Questionnaire U-24 (Albani et al.,

Eligibility

Sex/Gender

All

Age

18 Years to 99 Years

Inclusion criteria

Inclusion criteria: rheumatic diseases

Exclusion criteria

Exclusion criteria: non

Design outcomes

Primary

Measure	Time frame
Based on a modified instruction regarding disease-related conversations, communication deficits in these kinds of situations are assessed online on Insecure Questionnaire U-24 (Albani et al., 2006). In addition, questions about quantity and quality of disease-related conversations in daily situations (professional, private as well as public environment) are surveyed. To differentiate behaviour in the role of the invalid (daily disease-related conversations) from behaviour in the role of the patient (physician-patient-communication) behaviour during medical consultation is evaluated with the KoKo-Questionnaire. To serve as control variables personality characteristics with BFI-10 (Rammstedt & John, 2007), sociodemographic measures as well as duration and severity of the disease are assessed.	—

Measure

Time frame

Based on a modified instruction regarding disease-related conversations, communication deficits in these kinds of situations are assessed online on Insecure Questionnaire U-24 (Albani et al., 2006). In addition, questions about quantity and quality of disease-related conversations in daily situations (professional, private as well as public environment) are surveyed. To differentiate behaviour in the role of the invalid (daily disease-related conversations) from behaviour in the role of the patient (physician-patient-communication) behaviour during medical consultation is evaluated with the KoKo-Questionnaire. To serve as control variables personality characteristics with BFI-10 (Rammstedt & John, 2007), sociodemographic measures as well as duration and severity of the disease are assessed.

—

Secondary

Measure	Time frame
Further participants, also online, rate the U-24 with its original instruction. Thus, communication deficits of people with rheumatic diseases can be assessed in non-disease-related situations.	—

Countries

Germany

Contacts

Public ContactAnja Thyrolf

Martin-Luther-Universität Halle-Wittenberg Medizinische Fakultät Institut für Rehabilitationsmedizin

anja.thyrolf@medizin.uni-halle.de0345 557-1922

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026