Clinical and Laboratory Online Patient- and Research Registry for Primary Immunodeficiencies of the European Society for Immunodeficiencies (ESID)

Clinical and Laboratory Online Patient- and Research Registry for Primary Immunodeficiencies of the European Society for Immunodeficiencies (ESID) - ESID Registry

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00007776

Enrollment

50000

Registered

2015-02-05

Start date

2014-12-11

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

D84 D80 D81 D82 D83

Interventions

Group 1: Baseline documentation: Age, sex, familial cases, first symptoms, diagnosis, haemtopoietic stem cell transplantation (HSCT), immunoglobulin replacement (Ig replacement), lab values, clinical

Yearly follow-up: living status, therapy status (HSCT, Ig replacement), changes to diagnosis, lab values, clinical features

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Diagnosis of a primary immunodeficiency

Exclusion criteria

Exclusion criteria: Diagnosis of a secondary immunodeficiency

Design outcomes

Primary

Measure	Time frame
Determine the epidemiology of primary immunodeficiencies (PID)	—

Secondary

Measure	Time frame
Correlation of clinical features, life expectancy, complications, medication effects	—

Countries

Austria, Belgium, Croatia, Czechia, Egypt, France, Germany, Hungary, Iran, Ireland, Israel, Italy, Netherlands, Poland, Slovakia, Slovenia, Spain, Switzerland, United Kingdom

Contacts

Public ContactMarkus Seidel

Universität Graz, Österreich

registry@esid.org+43 316 385 80215

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026