Survey on the long-term outcome of opsomyoclonus-syndrome

Survey on the long-term outcome of opsomyoclonus-syndrome - OMS Survey

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00007547

Enrollment

Registered

2018-10-01

Start date

2015-02-01

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Opsoclonus Myoclonus Syndrome

Interventions

Group 1: ca. 30-50 patients diagnosed with OMS vor at least 2 years, survey now and maybe in ca. 2 years

Eligibility

Sex/Gender

All

Age

2 Years to No maximum

Inclusion criteria

Inclusion criteria: Patients with diagnose of opsomyoclonus-syndrome (OMS) during childhood, at least 2 years after diagnosis of OMS and agreement in survey

Exclusion criteria

Exclusion criteria: no exclusion criteria

Design outcomes

Primary

Measure	Time frame
survey now and maybe in ca. 2 years: quality of life (SF-36, KINDL) behaviour (CBCL, YSR)	—

Countries

Austria, Germany, Switzerland

Contacts

Public ContactBarbara Hero

Klinisches Studienzentrum PädiatrieKlinik und Poliklinik für Kinder- und JugendmedizinUniklinik Köln

neuroblastomstudie@uk-koeln.de+49-221-478 6853

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026